Author Archive:Christina Schüttler

ByChristina Schüttler

Clinical Data Day in Erlangen

The Medical Valley Europäische Metropolregion Nürnberg and d.hip (Digital Health Innovation Platform) had organized a clinical data day on Wednesday, December 18th 2019 in Erlangen. Ulli Prokosch and Detlef Kraska used this opportunity to present the Medical Informatics Initiative and the MIRACUM consortium as well as the organizational and technical steps towards establishing a data integration center at Erlangen University Hospital. Both presentations can be found here.

ByChristina Schüttler

Japanese-German-French Forum on AI and Healthcare in Tokyo and Joint Lecture in Kyoto

On 2 December 2019, the Japanese-German-French Forum on AI and Healthcare took place in Tokyo. This event, organized by DWIH Tokyo, focused on Artificial Intelligence (AI) applications and national approaches to data sharing in healthcare. During a panel discussion on “Joint Database for Medical Data”, Prof. Dr. Thomas Ganslandt (Professor of Medical Informatics at the Mannheim Medical Faculty of the University of Heidelberg) was given the opportunity to present the approaches and solutions of the Medical Informatics Initiative (MII) for the interoperable and secure provision of routine data for medical research in Germany. The talk can be found as a video on YouTube and the corresponding slides here.

Furthermore, Prof. Dr. Ganslandt followed an invitation by the Heidelberg University Office Kyoto (HUOK) to give a Nichi-Doku Joint Lecture on “Leveraging Clinical Data for Research: The MIRACUM Consortium within the German Medical Informatics Initiative” on 4 December 2019 in Kyoto. The corresponding slides can be found here.

 

ByChristina Schüttler

Launch of the “Zentrales Studienregister” at University Hospital Erlangen

Within the cooperative effort between the Comprehensive Cancer Center Erlangen-EMN (CCC EMN), the Medical Information and Communication Center of the University Hospital Erlangen and MIRACUM, the “Zentrales Studienregister” was launched recently. With this register, the University Hospital Erlangen from now on offers insight into more than 400 clinical oncological trials being pursued at University Hospital Erlangen, the Klinikum Bayreuth GmbH, the Sozialstiftung Bamberg and the Klinikum St. Marien Amberg, all cooperating within CCC EMN. Interested clinicians searching for clinical trials for their patients and patients themselves can obtain information about current trials under the web address https://studien.ccc-emn.de. Keywords and filter functions facilitate the search for relevant studies, specific diseases and dedicated clinical specialties. The resulting transparency offers patients the opportunity to become aware of studies with innovative therapy methods at an early stage and to benefit from pioneering approaches by participating in such a study. The contents of this registry is currently being extended to include also all non-oncological trials in the near future. Thus, the “Zentrales Studienregister” represents an important gateway between the patient and the clinic when carrying out clinical trials.

 

For more information read the official press release of University Hospital Erlangen.

 

Photo: Franziska Männel/ Uni-Klinikum Erlangen
ByChristina Schüttler

MIRACUM @ MEDICA 2019

This year the MEDICA again took place in Düsseldorf from 18th to 21st November. Visitors to the largest international medical trade fair were able to inform themselves about the Medical Informatics Initiative and the individual consortia at the BMBF booth. Furthermore, MIRACUM was given the opportunity to present its work at the Health IT Forum. Tim Herrmann (MIRACUM Project Coordinator Magdeburg, Medical Faculty of the Otto-von-Guericke University Magdeburg) presented the milestones achieved in MIRACUM so far and gave an overview on the projects for the second half of the funding period. Additionally,  Gunther Höning (CO-PI MIRACUM, University Medical Center Johannes Gutenberg University Mainz) gave a talk on “Meaningful Data Use and Sharing”. Both presentations are available under Conference Presentations 2019. All in all, MEDICA offered a good opportunity for interesting discussions and a lively exchange of experiences!

ByChristina Schüttler

Presentation of the MII Demonstrator Study at the AMIA 2019 Annual Symposium

While Chancellor Merkel mentioned at the “Digitalklausur” of the German Government that there is still lots of work ahead and that we must make better use of our data, Prof. Dr. Thomas Ganslandt (Professor of Medical Informatics at the Mannheim Medical Faculty of the University of Heidelberg; MIRACUM PI) gave a presentation at the AMIA (American Medical Informatics Association) 2019 Annual Symposium in Washington, D.C., illustrating the results of the first successful cross-consortial project (the “Demonstrator Study”) of the German Medical Informatics Initiative. In this Demonstrator Study 19 German university hospitals from all four MII consortia collaborated to successfully demonstrate early-on access to data and cross-site analyses. The MIRACUM consortium provided its dockerized i2b2 distribution together with a bundled ETL pathway for importing the German §21 billing dataset as an essential component for getting the Demonstrator Study off the ground. The experiences gained during the project as well as further iterations of the platform will be applied in the upcoming cross-consortial use cases of the MII.

 

The presentation slides can be downloaded here.

ByChristina Schüttler

A warm reunion with MIRACUM’s International Scientific Advisory Board in Eltville

On 6th/7th  October 2019 we were happy to welcome our International Scientific Advisory Board members Richard Frackowiak, Arie Hasman, Lisa McShane, George Hripcsak and Ahmet Zehir to Eltville, where they joined the Steering Board and Use Case Leaders from MIRACUM consortium for the ‘2nd ISAB Meeting’.
Even though the weather wasn’t kind enough to allow to explore some of Germanys most famous vineyards, the two days were packed with comprehensive DIC and Use Case presentations and updates on their current activities and future plans, as well as fruitful discussions. The MIRACUM Research Portal 2020, DIC Architecture and MIRACOLIX tools alongside with Cross – Consortial Results of the MII were amongst the topics discussed. The consortia members were pleased with the positive feedback on the work done so far and future recommendations from the International Scientific Advisory Board, which will not only help to strengthen our work in MIRACUM, but also the cross-consortia cooperation in the future.
ByChristina Schüttler

In Focus: Strengthening the Training of Medical Data Scientists

In an interview in Sysmex’ company magazine Xtra, Prof. Dr. Thomas Ganslandt (professor of Medical Informatics at the Mannheim Medical Faculty of the University of Heidelberg) describes the potentials of re-using routine clinical data for research in the Medical Informatics Initiative. The lack of qualified personnel currently is an important barrier towards this goal and needs to be addressed by various training measures. For this purpose, the MIRACUM consortium is developing a master’s program “Medical Data Science”, which opens up a broad field of competencies for its graduates. These include research activities, machine learning, personalized medicine and the development of health apps. Medical Data Scientists will play a key role in the utilization of information between all partners involved and realizing the potential of clinical data towards research and patient care.

Read more.

ByChristina Schüttler

MIRACUM Summer School 2019 – once again a great experience

After the successful start in Alsace (France) last year, the second MIRACUM Summer School took place from 22 – 26 September 2019 in the Marburger Haus in Kleinwalsertal coordinated by Technische Hochschule Mittelhessen. Under the motto “The difficult path from data sources to effective use of data”, nine lecturers from the MIRACUM consortium gave a comprehensive insight into individual parts of the project. In addition, the participants also had a seminar on scientific writing and scientific work.
 
Besides the seminars, there was of course enough time for the 20 participants (three of them from non-MIRACUM locations) to exchange ideas and experiences in a relaxed atmosphere, e.g. while exploring the surroundings on a hike through the Breitachklamm.
 
We are already looking forward to the Summer School next year!

 

ByChristina Schüttler

MIRACUM and the MII in the German Physicians Journal “Deutsches Ärzteblatt”

The current issue of the journal “Deutsches Ärzteblatt” (German Medical Journal) dedicated an extensive article to the Medical Informatics Initiative. In addition to an overview of the goals of the initiative, it also presents the four consortia and their use cases. Here, MIRACUM already gives an outlook for the next steps: On the one hand, a consortium-wide research portal will be established in the coming year, enabling researchers to obtain information about available patient records at the affiliated hospitals. On the other hand, approaches to enable future patient involvement via a patient portal will be pursued.

Although the consortia are in competition, it is emphasized that a strong focus should be placed on cross-consortia cooperation in working groups (Consent, Data Sharing, Interoperability and Communication) and projects such as POLAR (POLymedikation (Polymedication), Arzneimittelwechselwirkungen (Drug Interactions), Risiken (Risks)) and CORD (Collaboration On Rare Diseases) in order not to lose sight of the nationwide harmonization effort. This is also the case for upcoming projects such as the electronic patient file (ePA), which aims to be research-compatible by 2025.

You can find the full article here.

ByChristina Schüttler

New member of the i2b2/tranSMART Foundation

MIRACUM is proud that Prof. Dr. Thomas Ganslandt from University Medicine Mannheim has been elected as a new member of the i2b2/tranSMART Foundation. The i2b2 and tranSMART platforms play an important role for the consortium as research repositories within the MIRACOLIX toolbox. We are looking forward to actively participating in their further coordination and development within the Foundation. Please find further information here.

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