The 2019 EFMI (European Federation of Medical Informatics) Special Topic Conference on “ICT for Health Science Research” was organized by the Peter L. Reichertz Institute for Medical Informatics in Hannover (7th – 10th of April 2019). The MIRACUM consortium had submitted results of several MIRACUM sub projects and presented this work at the conference. Further Thomas Gansland together with Matthias Löbe (Leipzig, SMITH) had organized a workshop of the NSG AG Interoperability discussing the MI-I core dataset. The publications related to the MIRACUM presentations are openly available in the conference proceedings published in the Stud Health Technol Inform Series of IOS Press:
Representatives of the MIRACUM project actively participated in the DMEA 2019, the largest and most diversified IT industry meeting for the health sector in Europe, and presented the MIRACUM project there. They showed how at all MIRACUM university locations data from different application systems of health care and research are brought together in data integration centres in order to evaluate them with the help of innovative IT solutions for research purposes and therapy decisions and to use them in health care across locations. The data integration centres are the basis for the processing of special medical use cases: IT support for patient recruitment as part of clinical studies, prediction models, support for molecular tumour boards, rare diseases and the national register for recurrent upper urinary tract stone diseases (RECUR). During the DMEA, extensive results were presented on data integration, data harmonization, integration of omics data, building a basic data set, semantic data development and medical data sharing, and ways to a learning healthcare system.
A technical feature of the MIRACUM project is the primary use of open source solutions to build data integration centers and support use cases.
On 8th of April 2019 the DMEA (formerly conhIT) satellite event took place in Berlin. During the workshop “Can complex Information Systems in Healthcare be developed and operated on the basis of open source solutions?” Prof. Dr. Martin Sedlmayr (Dresden) presented MIRACOLIX-the Open Source Ecosystem of MIRACUM in the Medical Informatics Initiative, Dr. Tim Herman (Magdeburg) presented the open source solutions XNAT and ProxMox and Dr. Wolfgang Maier (Freiburg) presented the GALAXY platform for bioinformatics applications. This led to interesting discussions on the opportunities and risks of open source solutions in the healthcare sector. Please see presentations here.
At the first Biel Conference “Healthcare of the Future” (5th of April 2019) Ulli Prokosch gave a keynote presentation on “Digital Patient Communication: Improving the Hospital-Patient Relationship”. In this talk he illustrated that current personal electronic health record systems such as the German “Gesundheitsakte” (e.g. provided by several health insurance companies), the Austrian ELGA or the Swiss EPD are designed to be a “intersectoral patient-controlled storage of health documents” but not a means to improve hospital-patient-communication. For the latter purpose he encourages university hospitals to establish EHR-integrated Patient Portals which provide functionalities to support pre- and postadmission care scenarios, but also research scenarios such as informing the patient about the potential use of his/her care data for research purposes and engaging him actively in such process via interactive options to change his consent options whenever he wants. See his presentation for full details.
On 28th and 29th of March 2019 we held our second MIRACUM Symposium at the University Medical Center of the Johannes Gutenberg University in Mainz and were delighted to welcome around 170 participants.
With a view to Switzerland we were informed by Christian Lovis on the Swiss Personalized Health Network project, which is very similar to the Medical Informatics Initiative, and by Reinhold Sojer on the status of the Swiss Electronic Patient Record. In addition to further keynotes by Frank Ückert (DKFZ Heidelberg), Oliver Heinze (University Hospital Heidelberg) and Johannes Starlinger (HU Berlin), overview lectures on the previous results of the National Steering Committee working groups, the MIRACUM activities regarding training and further education and the MIRACUM Use Cases, we were able to present a newly acquired register project based on the MIRACUM DIC. In addition, Dagmar Waltemath introduced herself as new MIRACUM Professor for Medical Informatics at the University of Greifswald.
The MIRACUM Evening Event offered a good opportunity for networking and exchange.
Please find the presentations of the MIRACUM Symposium 2019 here.
We welcome all participants to our second Symposium at the University Medical Center of the Johannes Gutenberg University Mainz. After one year of the Medical Informatics Initiative the first structures of the Data Integration Centres and our use cases are making progress. Also the results of the activities in the National Steering Committee and its working groups show that the four consortia are working – also beyond their own concepts – very successfully together and can produce first comprehensive results. Through the official joining of the University Hospitals Dresden and Greifswald, MIRACUM has now grown to a total of 10 locations with DIC. We are pleased that also at this year’s Symposium international keynote speakers could be won again. Just in time for the MIRACUM Symposium we present our second MIRACUM Magazine, which provides an overview of the current activities and results of the consortium, and wish you a lot of joy while reading. We are looking forward to an exciting second MIRACUM Symposium in Mainz!
On Friday, 22nd February 2019, Professor Dr. med. Thomas Ganslandt (Medical Faculty Mannheim, University of Heidelberg) gave his inaugural lecture with the title “From Medical Data Science to Digital Health: How Data brings Care, Research and Patients together”. In March 2018, Professor Ganslandt was appointed to the newly established university professorship for Medical Informatics and, as managing director of the Heinrich-Lanz-Centre, he coordinates its reorientation towards digital health. In his lecture, he showed the potential that results from the current developments in medical data science and how the Heinrich-Lanz-Centre will develop this potential for research and patient care, especially for the patients of Mannheim University Hospital.
From February 11th to February 12th, 2019, a Steering Board meeting took place at the University Hospital Mannheim. Around 30 representatives from ten locations in Germany came together for two days of intensive exchange. A wide range of topics such as data quality, use cases or the strengthening of medical informatics, the current status and current activities were presented. Open points were discussed constructively in order to be able to continue on the path of successful and good cooperation. Sitting together for dinner not only strengthened the body, but also the team spirit.
The Institute for Medical Biometry, Epidemiology, and Informatics is looking for a Computer Scientist. You will be actively involved in projects for Data Integration for medical research and patient care. More information can be found here. Application deadline is March 24th 2019.
We congratulate Dr.-Ing. Dagmar Waltemath, who was appointed as Professor of Medical Informatics by the University of Greifswald on 01.12.2018. Dagmar Waltemath studied computer science at the Universities of Rostock and Linköping (Sweden) with a focus on databases and information systems. She was a Marie-Curie fellow at the European Bioinformatics Institute (Cambridge, England) and received her PhD from the University of Rostock on the standardisation of biochemical simulation studies. After a PostDoc at the Norwegian University of Life Sciences (Norway) she headed a research group at the Chair of Systems Biology and Bioinformatics at the University of Rostock from 2011-2017. Her group developed concepts and computer tools for the efficient storage of computer-aided simulation studies in systems biology. Her work is part of numerous simulation tools, and the data standards she has developed are used worldwide for data exchange.
The Chair of Medical Informatics is affiliated to the MIRACUM project. Here, Ms. Waltemath will deal with concepts of digitalisation, storage and long-term availability of clinical research data in the KAS+.
Photo: Till Junker/University of Greifswald