The current issue of the journal “Deutsches Ärzteblatt” (German Medical Journal) dedicated an extensive article to the Medical Informatics Initiative. In addition to an overview of the goals of the initiative, it also presents the four consortia and their use cases. Here, MIRACUM already gives an outlook for the next steps: On the one hand, a consortium-wide research portal will be established in the coming year, enabling researchers to obtain information about available patient records at the affiliated hospitals. On the other hand, approaches to enable future patient involvement via a patient portal will be pursued.
Although the consortia are in competition, it is emphasized that a strong focus should be placed on cross-consortia cooperation in working groups (Consent, Data Sharing, Interoperability and Communication) and projects such as POLAR (POLymedikation (Polymedication), Arzneimittelwechselwirkungen (Drug Interactions), Risiken (Risks)) and CORD (Collaboration On Rare Diseases) in order not to lose sight of the nationwide harmonization effort. This is also the case for upcoming projects such as the electronic patient file (ePA), which aims to be research-compatible by 2025.
You can find the full article here.