At the beginning of October 2022, more than 300 participants from university medicine, research politics, associations and patient organizations met in Berlin for the first congress of the Medical Informatics Initiative (MII). After the successful MIRACUM symposium in Giessen, the representatives of MIRACUM were happy about this inspiring event in the German capital.
The MIRACUM consortium was able to contribute some noteworthy contributions (the program can be found here). Of particular note was the live demonstration by consortium leader Prof. Dr. Hans-Ulrich Prokosch entitled “The Researcher’s Path through the Research Data Portal for Health from “Showcase” to Feasibility Request and Data Use Application to Project”.
Also, Dr. Katrin Crameri (member of the MIRACUM International Scientific Advisory Board ISAB, among others) was awarded with her keynote on the topic “From clinical (routine) data to FAIR research data: The contribution of the Swiss Personalized Health Network (SPHN) to the Swiss health data ecosystem” received much attention. In the case of the Swiss Confederates, the SPHN is a similar network to the MII, which faces similar challenges to the MII in Germany.
Shortly before the start of the expansion and extension phase 2023-2026, other focal points included a review of the 2018-2022 funding phase and, in particular, the results achieved, such as the establishment of the Data Integration Centers (DIZ) or the development of a patient consent (“Broad Consent”) that can be used throughout Germany for the use of patient data, biomaterials, analysis methods and routines within the framework of the MII. The junior research groups and Digital Progress Hubs Health associated with MIRACUM were also represented in the program.
Looking to the future, the focus was on networking with other initiatives such as the Network University Medicine (NUM), the National Research Data Infrastructure (NFDI) and the Working Group of Medical Ethics Committees (AKEK). The Federal Ministry of Education and Research (BMBF) is funding this phase of the MII with a total of €200 million.